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2023 PRIM&R Annual Conference

Emerging Research Challenges and Breaking Issues

Research Oversight Leaders and Institutional Officials

Shared Research Oversight Challenges

Research Involving Data and Biospecimens

[IN-PERSON/LIVESTREAMED] Plenary Session: The Ethics of Data Sharing

Monday, December 4, 2023
10:30 AM – 11:45 AM ET
Location: Ballroom AB
Livestreaming Session Icon Institutional Leadership Thought Leader Series CIP Accredited
This plenary session will be held in-person, livestreamed for the Virtual Meeting, and recorded for on-demand access by attendees registered for PRIMR23 on this day.

This session will focus on the ethical implications of the newly implemented NIH Data Management and Sharing Policy, including concerns regarding privacy, loss of intellectual property, scooping, and potential for misuse of shared data. Beyond the ethical implications, speakers will explore various compliance options to ensure ethical data sharing, as well as adherence to approved data management and sharing plans.

Learning Objectives:

  • Review the requirements of the newly implemented NIH Data Management and Sharing Policy
  • Identify the ethical issues specific to data sharing prior to peer-reviewed publications
  • Explore the ethical reasons for not sharing data and how those ethical reasons compare to the acceptable justifications for not sharing data as put forth by the NIH
  • Discuss various compliance options institutions could implement to ensure the sharing of research data is not only done in an ethical manner, but in a manner that is in compliance with approved data management and sharing plans