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2023 PRIM&R Annual Conference

Communication With the Public

Education, Qualifications, and Training

Informed Consent

B07 - [IN-PERSON ONLY] Supporting Informed Decision Making: How to Foster the Development of Understandable Research-Related Information

Monday, December 4, 2023
2:15 PM – 3:15 PM ET
Location: Room 201
Human Subjects Research Call for Session Proposal Learning Lab Series CIP Accredited
This session is being held in-person only at PRIMR23. It will not be recorded for on-demand access or for the PRIMR23/SBER23 Virtual Meeting.

The ability to understand and use health and science information (including complex information like percentages and other numeracy concepts) in clinical research is a critical component of informed decision-making and public trust in the research enterprise. Increasing institutional awareness about health literacy and the need to include relevant visuals and other aids when developing and sharing clinical research-related information, supports the creation of tailored information that meets the needs of the intended audience of potential and enrolled study participants. During this session, speakers will introduce health and science literacy considerations within the clinical research context and outline specific techniques that can be used to present visual information that augments understanding of research studies, participation, and results.

Learning Objectives:

  • Understand what health and science literacy is and its role in clinical research and effective informed consent
  • Describe specific approaches to communicating complex health and scientific information (e.g. numeric info) within participant-facing materials
  • Apply plain language and health literacy principles to the presentation of research-related participant-facing information